Archive for the ‘Related News’ Category

NAMI Reveals Pharma Funding

The National Alliance on Mental Illness (NAMI) until recently was reluctant to reveal the source of its funding. But thanks to Sen. Grassley we now can learn NAMI?s sources for Major Foundation and Corporate Support, which you can find here. I downloaded the list of ?funders? for 2009. Fortunately, unlike pharmaceutical companies who have revealed monies paid to physicians (see, for example, ?Transparency Vs. Translucency in Reporting Physician Payments?), NAMI?s numbers are easy to copy into Excel spreadsheets and analyze.

by John Mack
Pharma Marketing Blog

In 2009, NAMI received 84 payments over $5,000 from different sources. Payments total $4,737,610.00 of which $3,836,750.00 (81%) came from major pharmaceutical companies. The following pie chart shows how the $3,836,750.00 was divided among major pharma funders (click on the chart for an enlarged view).

The biggest pharma funder in 2009 was AstraZenca (AZ), which donated $1,255,000.00. Recall that AZ is forced to pay about 400X that amount ($520 million) to resolve allegations that it illegally marketed the anti-psychotic drug Seroquel for uses not approved as safe and effective by the Food and Drug Administration (see HHS press release here). I guess you might say AZ got a large NEGATIVE ROI for its NAMI investment!

Lilly was next on the list having donated $750,500.00 to NAMI in 2009. Recall that Lilly markets Cymbalta and that it recently received a warning letter from the FDA about misleading a Cymablta print ad ? ie, re: ?omission of risk information.? Cymbalta is indicated for treatment of depression among many other things these days (see ?The Cymbalta Buzz Machine is at Full Throttle!?).

The third biggest NAMI pharma ?funder? for 2009 was BMS, which donated $506,250.00. Recall that BMS markets the drug Abilify for bipolar disorder. Some time ago, Andy Behrman ? BMS?s patient spokesperson for Abilify ? went on a campaign against the very product he endorsed for money (see ?Andy Behrman, Now an Anti-BMS Spokesperson, Says ?Ask Your Doctor If Abilify is Wrong for You??).

It?s a crazy, crazy world out there in the marketing of mental illness drugs!

 

Source: Office of Medical and Scientific Justice

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Stigmatizing Borderline Personality – Darth Vader Diagnosed with BPD


Darth-vader1 Does Darth Vader/Anakin Skywalker meet the diagnostic criteria for Borderline Personality Disorder? This was a questions posed, for some reason, and for an even less understandable reason answered by Eric Bui and colleagues at Toulouse University Hospital in France in what has been described as “a brazen act of arm-chair diagnosis”. Who does this serve? Who does this help – anyone? What is the meaning of this? Does it matter? It might mislead loved ones of those with BPD in unhelpful ways.


How can this “diagnosis” of a fictional character help anyone understand Borderline Personality Disorder? Isn’t it likely really to muddy the waters and be more of a case of mis-information? Just what BPD needs right? More confusion? How can anyone who loves or cares about someone with Borderline Personality Disorder really come to understand the the mind of those who are diagnosed with BPD? This diagnosis of a fictional character who many don’t believe is an accurate diagnosis anyway will only mislead loved ones away from the facts about BPD that they need to know, want to know, and will benefit from knowing.


How are people who have been diagnosed with Borderline Personality Disorder supposed to feel about this? How can this possibly be viewed as helpful? How can anyone with BPD think that people who already don’t understand their pain and suffering can possibly learn anything from such an irresponsible “diagnosis” of a movie character that isn’t even real?


Talk about a lack of sensitivity. What a lack of respect, really. Stigmatizing BPD while potentially trivializing it as well.


Does this “diagnosis” of a fictional character with Borderline Personality Disorder have any up-side? Perhaps, only in that it brought some media attention to Borderline Personality Disorder. Or some pop-culture attention. However, I think the negatives of this far outweigh that potential positive. It seems that when pop-culture or media mention or in anyway portray Borderline Personality Disorder (as they often do without making that clear) it ends up really only succeeding in the furthering of negative, damaging, and hurtful stigma against people who are living with BPD.


The down-side that I believe is being over-looked and that matters most is the way in which this further stigmatizes not only the diagnosis of Borderline Personality Disorder, but, even more importantly, the people diagnosed with it? Why? Because of the connection between the inherent evil of Darth Vader and the stigma that has long been perpetuated toward those with BPD as being evil.








Dr. Bui, apparently came up with his ?diagnosis? of Darth Vader while watching two of the three Star Wars prequel movies, Attack of the Clones and Revenge of the Sith. He theorizes that young Anakin Skywalker was separated from his mother at an early age and his father was absent and that these are the factors that could have contributed to his mental illness.


Anakin-Jedi Apparently in his theorizing, Bui, also believes that also indicative of this character’s supposed Borderline Personality Disorder are his ?infantile illusions of omnipotence? and ?dysfunctional experiences of self and others.?  It is perceived and concluded that he often showed impulsive behavior and had difficulty controlling his anger. Anakin Skywalker’s eventual turn to the Dark Side and name change, to Darth Vader, could represent the ultimate sign of an identity disturbance is the apparent reasoning behind this entire exercise of “arm-chair diagnosis”.


It can be argued, though it’s hardly worth it, that “infantile illusions of omnipotence” would point more at Narcissistic Personality Disorder than BPD. As for “dysfunctional experiences of self and others” I think it reasonable to conclude that Walker/Vader’s transformation is not the experience of people who have Borderline Personality Disorder. Here’s where diagnosing a movie character makes it tricky doesn’t it? I mean, the archetypal nature of this shift in a character’s identity is a work of fiction that no doubt seeks to depict many epic human struggles and not just struggles or challenges that can be described as being the result of any mental illness, let alone Borderline Personality Disorder. The archetypal richness of this character speaks to many interpretations. However, ascribing this character’s experience or interal feelings, perceptions, and the like to BPD, let alone any mental illness is nothing short of ridiculous. It misses the entire point of the character really.

Anakin Skywalker’s eventual turn to the dark side and name change do not have anything to do with BPD specifically or exclusively at all. Where this conclusion comes from who knows. It doesn’t follow any type of logic. But then, how could it? This eventual turn to the dark side of Walker’s as he took on the identity of Darth Vader is not something that bears any resemblance to the experience of people with BPD. People diagnosed with BPD do not have a stable sense of identity. This, however, does not mean they go from who they are (or the not being sure about who they are) to being drastically different and turning to some dark side. This comparison is evidence of the equating of  BPD with evil which is irresponsibile and not accurate.



What is it in this world today, anyway, that everything has to be pathologized? Isn’t it ironic how black-and-white many people in the world are thinking – people who are not diagnosed with BPD? People who invoke the topic of BPD, diagnose fictional characters, like this psychatrist, Bui, or lay-people who are busy diagnosing anyone and everyone they know but themselves?


The dilemma here, in terms of understanding is hidden, perhaps for many, within the central and often over-looked definition of what Borderline Personality Disorder actually is. The way it is defined in the DSM-IV by psychiatrists outlines 9 traits. Out of these 9 traits a person must meet the criteria for 5 of them in order to be diagnosed as having BPD – by a professional.


The very traits that form the basis for what defines borderline personality disorder are human traits. They are human traits that are found more intensely and more often in those who meet the criteria for BPD. They are not some separate set of traits that just define BPD. My point here is that many others who may not meet the criteria for BPD will struggle with some of these traits. Why? Because they are human traits firstly and foremostly. Those with BPD and people who are not personality-disordered do not have different core traits. What is different is the way that these traits manifest themselves and are perceived and experienced – but not the traits themselves.


Is it any wonder then that people who love or care about someone with BPD may end up thinking they themselves have BPD? People are going around thinking this person or that person has BPD because he or she did or said this or that, or because he or she was angry or thought in a black-and-white way about something. In other words, there is this over-pathologizing going on. People pointing fingers at others and at each other. And, now, psychatrists at a fictional character for crying-out-loud – Vader – as having  Borderline Personality Disorder.


 




  Audio Programs ? A.J. Mahari




Where has common sense gone? The traits that define BPD are human traits. Each and every one of us as human beings has these traits. It is not pathological to have these traits in reasonably balanced and paradoxical ways.

Bui, et al, diagnosing Darth Vader with Borderline Personality Disorder seems to give creedence to the many ways that people disparage people who have BPD. I don’t agree with this at all. I think the diagnosis of a fictional character – even if they get it right (let’s not forget there are many reasons to doubt Darth Vader would be a candidate for BPD if he were a real person) is in any way responsible or worth the time or effort given to it.


Why do I write about it here then? To say that the danger of this is the further stigmatizing of BPD and those who have BPD. It sensationalizes BPD and what it means to have BPD while at the same time trivializing it. It doesn’t serve anyone. I also have concern that this “arm-chair diagnosis” that equates BPD to this fictional character, who was a personification of evil, is highly irresponsibile and frankly, offensive.


Darth Vader has been diagnosed with Borderline Personality Disorder. Aside from the issues of that equating BPD with evil, so what, who cares?


Where’s the relevance? Where’s the significance? How can this be a worthwhile teaching tool for tomorrow’s psychiatrists? How can this benefit anyone with BPD? How can this really serve to help others understand BPD in balanced and compassionate ways?


The answer is - it can’t.


All this diagnosis of Darth Vader with Borderline Personality Disorder does is serve as a prime example of its being equated with evil. It serves as a prime example of the stigma of BPD. It may even give rise to more people with BPD distrusting the very body of professionals who are supposed to treat them, and I might add, with respect.


 


? A.J. Mahari, June 26, 2010 – All rights reserved.


 













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From Psychobabble to Biobabble – Dr. Andrew Scull on “A Psychiatric Revolution”

Brainmindcandybiobabble


The rise in the prescribing of medication by many in the psychiatric profession has turned psychobabble: “writing or talk using jargon from psychiatry or psychotherapy” (dictionary.com) into biobabble: “knee-jerk biological determinism” (Kathleen H. Dockett, G. Rita Dudley-Grant, and C. Peter Bankart – authors of the book, Psychology and Buddhism: From Individual to Global Community (International and Cultural Psychology) What do you think? How can you find your way to effective and safe treatment for Borderline Personality Disorder or other forms of mental illness if you don’t stop to consider the pharmaceutical agenda that drives biobabble? Can you? Who do you believe? Are you aware of the shift in psychiatry from analysis to medication? What are the ramifications of this? On the line is the mental health and well-being of millions of people. Underneathe it all what is the true quest – to treat and to cure or to make money?





The labelling of many mental illnesses as “brain diseases” in the last 10 or so years has led to what many professionals are countering now as pseudo-science – an ideology that isn’t anymore supported, proven, or documented than older ideologies that maintain that much of mental illness has more to do with emotional/psychological and psychosocial elements of human experience than anything biological and literally physically brain-based or genetic.


 


READ MORE …


? A.J. Mahari, April 15, 2010

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BPD and The Brain – Cognitive Training Can Alter Biochemistry Of The Brain

Borderline Personality Disorder is thought to be caused by a combination of biological and environmental factors – nature versus nurture. Now scientists are finding that cognitive training can alter brain chemistry. This is what I've long since known as I experienced this in my own recovery from Borderline Personality Disorder. The good news for those with BPD is that regardless of the degree to which brain chemistry may be altered (yet to really be proven) the fact is that therapy, specifically cognitive based therapy can alter brain chemistry and create the changes required in thinking to recover from Borderline Personality Disorder.


Audio Programs ? A.J. Mahari


Science Daily (Feb. 9, 2009) ? Researchers at the Swedish medical university Karolinska Institutet have shown for the first time that the active training of the working memory brings about visible changes in the number of dopamine receptors in the human brain. The study, which is published in the journal Science, was conducted with the help of PET scanning and provides deeper insight into the complex interplay between cognition and the brain's biological structure.
"Brain biochemistry doesn't just underpin our mental activity; our mental activity and thinking process can also affect the biochemistry," says Professor Torkel Klingberg, who led the study. "This hasn't been demonstrated in humans before, and opens up a floodgate of fascinating questions."


Source:
Science Daily


The rest of the article talks in more detailed way about the neurotransmitter dopamine and how it plays a key part in many of the brain's
functions. "Disruptions to the dopamine system can impair working
memory, making it more difficult to remember information over a short
period of time …"
This is less the issue with the causation and reality that Borderline Personality Disorder is treatable and has a lot more to do with being applied, according to the article, to disorders "such as ADHD and schizophrenia."

This study though does, I believe, have some relevance to the reality of BPD and the fact that at the heart of BPD are fragmented and cognitively distorted or impaired patterns of thinking that have their roots in abandonment and/or childhood trauma – which can change brain chemistry – as well as in the effect of stress experienced when mirroring and attachment needs are not met causing an arrested emotional development which in many ways can be somewhat said to be what BPD really is.

I often receive emails from people diagnosed with BPD who think that what they've heard about BPD and the brain means that it will take some "magical pill" to "cure" BPD. Many who have emailed me also feel there is no reason to then work hard in therapy and take a self-directed and determined approach to the process and work of therapy.


Audio Programs ? A.J. Mahari


There is a danger that some with BPD may start to believe that "my brain made me do it" or "my brain made me feel this" or "my brain made me say that" in what are not accurate beliefs, number one. And number two, in what are responsibility shirking victim stance mindsets that will only continue to keep borderlines stuck in the active throes of BPD.

It is also important for those with BPD to know that all of the information coming out from study after study these days, none of it proven or totally understood or directly related to any proven conclusion, does not mean that you cannot recover. This information does not mean that your brain is controlling you and that you can't help it and therefore aren't responsible for it. To think this way is to directly cause yourself to stay stuck in the pain and suffering of BPD.

There isn't and won't be any magical-cure-all pill. Each person with Borderline Personality Disorder still needs to take personal responsibility for getting into therapy, making a committment to do the work, stick with it, and to trust the process.

Let the awareness that you have choices to make be your guide. Your brain is not making choices for you. It's a part of it but it's not some automatic machine totally independent of what you think. Learn what it means that so much of what others refer to as your borderline behaviour has all to do with choices that you are making – often subconsciously.

Consciously or subconsiously – choices that are choices nonetheless.

Choices that are often limited to negative patterned ways of thinking distorted thoughts because those with BPD tend to experience what they feel as being real - often skipping being aware of what they are actually thinking. It is those thoughts that you are thinking, if you have BPD, that are producing the feelings that you are reacting to and acting on, often impulsively, that really fuel borderline behaviour and in fact, borderline pain and suffering.

So much of Cognitive Behavioral Therapy (CBT) and Dialiectical Skills Training (DBT) therapy and other forms of therapy have at their core teaching the person with Borderline Personality Disorder how to be more aware of what they are thinking and how thoughts effect feelings to put it simply.

There is hope for change and recovery in and from Borderline
Personality Disorder even when things are talked about by professionals
in terms of having something to do with brain chemistry. It is
important with all the latest breaking studies to keep in mind the
awareness that BPD can be recovered from.

? A.J. Mahari, February 12, 2009 – All rights reserved (except for the quoted material noted above)


A.J. Mahari, who has been recovered from BPD for 14 years now, is a Life Coach who, among other things, specializes in working with those with Asperger's Syndrome and their partners, relatives, or friends. A.J. has 6 years experience as a Life Coach and works with clients from all over the world.


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